IAP Textbook of Down Syndrome
Key Features
- Down syndrome (trisomy 21) is a condition that every doctor interested in child health is definite to encounter. Despite its prevalence of approximately 1 in 700 live births, the management of this condition and the counseling of parents often remain neglected due to a lack of training or understanding of its multifaceted aspects. Early diagnosis and appropriate management can enable individuals with Down syndrome to lead near-normal, independent lives. This book offers a comprehensive exploration of the challenges faced by individuals with Down syndrome and provides detailed current management guidelines.
- It also addresses the legal considerations and available support systems crucial for their well-being.
- With contributions from leading experts across India, the book comprises 28 chapters covering a wide range of topics, making it an invaluable resource.
- The IAP Textbook of Down Syndrome emphasizes not only the medical management of the condition but also the importance of early intervention programs.
- By focusing on habilitation rather than rehabilitation, the book underscores proactive approaches to care and development.
- This is the first comprehensive reference textbook on Down syndrome authored from a developing country's perspective.
- It is designed to benefit doctors, general pediatricians, obstetricians, and medical students by providing an in-depth understanding of the condition and practical guidance for its management.
- Since founding the Down Syndrome Trust (DoST) in 2000, the editor has been privileged to work with more than 2,000 children, helping them and their families navigate their unique journeys.
- This book is a reflection of that experience and the collective expertise of the contributors, aiming to inspire and guide others in providing holistic care for individuals with Down syndrome.
Key Features
- Down syndrome (trisomy 21) is a condition that every doctor interested in child health is definite to encounter. Despite its prevalence of approximately 1 in 700 live births, the management of this condition and the counseling of parents often remain neglected due to a lack of training or understanding of its multifaceted aspects. Early diagnosis and appropriate management can enable individuals with Down syndrome to lead near-normal, independent lives. This book offers a comprehensive exploration of the challenges faced by individuals with Down syndrome and provides detailed current management guidelines.
- It also addresses the legal considerations and available support systems crucial for their well-being.
- With contributions from leading experts across India, the book comprises 28 chapters covering a wide range of topics, making it an invaluable resource.
- The IAP Textbook of Down Syndrome emphasizes not only the medical management of the condition but also the importance of early intervention programs.
- By focusing on habilitation rather than rehabilitation, the book underscores proactive approaches to care and development.
- This is the first comprehensive reference textbook on Down syndrome authored from a developing country's perspective.
- It is designed to benefit doctors, general pediatricians, obstetricians, and medical students by providing an in-depth understanding of the condition and practical guidance for its management.
- Since founding the Down Syndrome Trust (DoST) in 2000, the editor has been privileged to work with more than 2,000 children, helping them and their families navigate their unique journeys.
- This book is a reflection of that experience and the collective expertise of the contributors, aiming to inspire and guide others in providing holistic care for individuals with Down syndrome.
Description
In this heartfelt and inspiring memoir, Dr. Shaji Thomas John recounts a pivotal moment in his medical career that transformed his personal and professional journey. Set in the mid-1990s, the story begins with the visit of an infant suffering from a respiratory infection—who, upon examination, is also found to have Down syndrome and congenital heart disease. Unsure of the mother’s awareness and lacking formal training in counseling, the young doctor delivers routine care and asks her to return after a week. The follow-up conversation, however, leaves a lasting impression. When the mother—already aware of her child’s diagnosis—asks a haunting question, “Why are all the doctors so cruel?”, it shakes the doctor to his core. Her emotional response, “This condition may be 1 in 800 for you, but it is 100% for me,” resonates deeply, especially as Dr. John reflects on his own daughter, Tina, who also has Down syndrome. This moment becomes the catalyst for change. Recognizing the urgent need for better awareness, support, and compassion, he goes on to establish the Down Syndrome Trust (DoST) in 2000. Since its inception, the trust has transformed the lives of over 1,500 children with Down syndrome, empowering families and reshaping medical attitudes. This moving narrative traces one doctor's evolution from clinical detachment to passionate advocacy, offering a powerful message of empathy, resilience, and hope. Remarkably, the infant from that pivotal consultation now shines as a professional model and calendar girl—a testament to what understanding and support can truly achieve.
Product Details
Publisher :
JPB
Edition :
1/e
Binding :
Paper Back
Language :
English
Pages :
184
ISBN-13 :
9789366164007
Dimensions :
8.25 x 10.5
Printing Format Color :
Four Color
Copyright year :
2025